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RARE Artist

Washington, DC

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  1. 17 Shoelaces by Mayme Killeen - Friedreich's Ataxia, Image 1.

    17 Shoelaces

    Mayme Killeen - Friedreich's Ataxia

    3D Material Art: acrylic, canvas, polyester shoelaces

  2. 20 Pills A Day Keeps The Demons At Bay by Madison Cooke - Rocky Mountain Spotted Fever, Image 1.

    20 Pills A Day Keeps The Demons At Bay

    Madison Cooke - Rocky Mountain Spotted Fever

  3. A Borboleta by Arthur Oliveira - Secondary Adrenal Insufficiency, Image 1.

    A Borboleta

    Arthur Oliveira - Secondary Adrenal Insufficiency

  4. A Haiku to SD by Clarissa Castillo-Ramsey - Adductor Spasmodic Dysphonia, Image 1.

    A Haiku to SD

    Clarissa Castillo-Ramsey - Adductor Spasmodic Dysphonia

    2D Visual Art: Mixed Media

  5. A Mother's Love by Carino Imbrogno - Ehlers-Danlos Syndrome, Image 1.

    A Mother's Love

    Carino Imbrogno - Ehlers-Danlos Syndrome

    Pastels

  6. Alive Again by Zanny Nicholas - Complex Regional Pain Syndrome, Image 1.

    Alive Again

    Zanny Nicholas - Complex Regional Pain Syndrome

    Music

  7. Amazing Creation by Brenna Bruck - Fragile X Syndrome, Image 1.

    Amazing Creation

    Brenna Bruck - Fragile X Syndrome

    Canvas and acrylic paint pens

  8. An Aspiring Pharmacist by Miranda Walker - Neuromyelitis Optica, Image 1.

    An Aspiring Pharmacist

    Miranda Walker - Neuromyelitis Optica

    Prismacolor pencils

  9. Another You by Sophie Seaver - MED13L (Sibling), Image 1.

    Another You

    Sophie Seaver - MED13L (Sibling)

    Music

  10. Avery by Tim Chambers - Usher Syndrome, Image 1.

    Avery

    Tim Chambers - Usher Syndrome

  11. Behind The Eye by Sarah Dillon - Thyroid Eye Disease, Image 1.

    Behind The Eye

    Sarah Dillon - Thyroid Eye Disease

  12. Benign Is Not Fine by Eugenie Hsu - Craniopharyngioma (Caregiver), Image 1.

    Benign Is Not Fine

    Eugenie Hsu - Craniopharyngioma (Caregiver)

    Short Film

  13. Between Scans by Jill Gassman Zullo & Claudio Zullo - Sinonasal Mucosal Melanoma (Patient and Caregiver), Image 1.

    Between Scans

    Jill Gassman Zullo & Claudio Zullo - Sinonasal Mucosal Melanoma (Patient and Caregiver)

    3D Material Art: Mixed media sculpture: steel, wood, "3-D printed" frame, chicken wire, chain, slate, and metal hardware.

  14. Boys Are Girls Are Bugs by Marshall Kopacki - Paroxysmal Nocturnal Hemoglobinuria, Image 1.

    Boys Are Girls Are Bugs

    Marshall Kopacki - Paroxysmal Nocturnal Hemoglobinuria

  15. Breathtaking by Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient, Image 1.

    Breathtaking

    Sarah Donoughue - Pulmonary Hypertension/lung transplant recipient

  16. Clara's World by Melinda Habingreither - Gangliosidosis (GM1), Image 1.

    Clara's World

    Melinda Habingreither - Gangliosidosis (GM1)

  17. Color Thoughts by Sarah Larkins - Arteriovenous Malformation, Image 1.

    Color Thoughts

    Sarah Larkins - Arteriovenous Malformation

    Digital Art and Photography: Procreate

  18. Colors of Courage by Rylie Erbacher - Spinal Muscular Atrophy, Type 2, Image 1.

    Colors of Courage

    Rylie Erbacher - Spinal Muscular Atrophy, Type 2

    Chalk Pastels, Pencil

  19. Crowned Histology by Amanda Van Eps - Subependymoma, Ehlers Danlos Syndrome, Image 1.

    Crowned Histology

    Amanda Van Eps - Subependymoma, Ehlers Danlos Syndrome

    3D Material Art: Glass slides, agate slices, metal band, clear epoxy.

  20. Crow’s Armor by Lia Ottinot - Sickle Cell Anemia, Image 1.

    Crow’s Armor

    Lia Ottinot - Sickle Cell Anemia

    Clay

  21. Digested by Beatriz Fraga - Neurosarcoidosis, Image 1.

    Digested

    Beatriz Fraga - Neurosarcoidosis

    Colored Pencil

  22. Don't Surrender to Fear by Joyce Fitz - Schwachman-Diamond Syndrome, Image 1.

    Don't Surrender to Fear

    Joyce Fitz - Schwachman-Diamond Syndrome

    Music

  23. Dragonfly by Chloe Hoover - Dysautonomia, Image 1.

    Dragonfly

    Chloe Hoover - Dysautonomia

  24. Dreamy Delirium by Elizabeth Hoverman - Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC) Syndrome, Image 1.

    Dreamy Delirium

    Elizabeth Hoverman - Ectrodactyly-Ectodermal Dysplasia-Clefting (EEC) Syndrome

  25. Eating is Hold by Nicole Thrower - Phelan McDermid Syndrome, Image 1.

    Eating is Hold

    Nicole Thrower - Phelan McDermid Syndrome

  26. Elephant In The Room by Nell Choi - Neuromyelitis Optica, Image 1.

    Elephant In The Room

    Nell Choi - Neuromyelitis Optica

    Clay

  27. Escape from Reality by Emmalyn Hudson - Glutaric Aciduria/Acidemia Type 1, Image 1.

    Escape from Reality

    Emmalyn Hudson - Glutaric Aciduria/Acidemia Type 1

  28. Experiment by Grey Pomeroy -, Image 1.

    Experiment

    Grey Pomeroy -

    Acrylic paint, mod podge, syringes, tea bags, hot glue

  29. Eye of Hope by Christina Schulz - Fibrous Dysplasia, Image 1.

    Eye of Hope

    Christina Schulz - Fibrous Dysplasia

    Colored Pencil

  30. Eye of the Beholder by Casey Witte - Albinism (OCA2 Variant), Image 1.

    Eye of the Beholder

    Casey Witte - Albinism (OCA2 Variant)

  31. Fragments by Kate Thompson - Epidermolysis Bullosa, Image 1.

    Fragments

    Kate Thompson - Epidermolysis Bullosa

    2D Visual Art: Colored Pencil

  32. From Pain to Purpose by Laura Romano - Classical-like Ehlers-Danlos Syndrome, Image 1.

    From Pain to Purpose

    Laura Romano - Classical-like Ehlers-Danlos Syndrome

    Digital Art

  33. Hands of Resilience by Emma Schaberg - Marfan Syndrome, Image 1.

    Hands of Resilience

    Emma Schaberg - Marfan Syndrome

  34. Happy Flowers in Tall Grass by Ella Palinchak - Alagille Syndrome, Image 1.

    Happy Flowers in Tall Grass

    Ella Palinchak - Alagille Syndrome

  35. Hidden Clarity by Lena Smith - Granular Corneal Dystrophy, Image 1.

    Hidden Clarity

    Lena Smith - Granular Corneal Dystrophy

    Acrylic On Canvas

  36. Hope Through Trees by Kelley Hennessy - Friedreich’s Ataxia, Image 1.

    Hope Through Trees

    Kelley Hennessy - Friedreich’s Ataxia

  37. I Am a Piece of Art by Dani Wieczorek - Ectrodactyly, Image 1.

    I Am a Piece of Art

    Dani Wieczorek - Ectrodactyly

    Digital Art and Photography: Photograph Series - Digital

  38. I AM RESILIENT by Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility, Image 1.

    I AM RESILIENT

    Sati Cooper-McCann - Stickler Syndrome (COL2A1) with Hypermobility

    Digital Art

  39. I Am Still Me by Mary Sott - Cushing's Syndrome leading to Addison's Disease, Image 1.

    I Am Still Me

    Mary Sott - Cushing's Syndrome leading to Addison's Disease

    Digital Art and Photography: 35mm negatives, digital camera

  40. I'm not used to this by Rachel Shalit - Gaucher Disease & Undiagnosed, Image 1.

    I'm not used to this

    Rachel Shalit - Gaucher Disease & Undiagnosed

    Poetry

  41. Imperfect Pathway by Krista Webb - Usher Syndrome, Image 1.

    Imperfect Pathway

    Krista Webb - Usher Syndrome

    Wood Burning

  42. In My Lungs by Caroline Lewis - Cystic Fibrosis, Image 1.

    In My Lungs

    Caroline Lewis - Cystic Fibrosis

    2D Visual Art: Mixed Media

  43. In Someone Else’s Shoes by DaNice D Marshall - Granulomatosis with Polyangiitis, Image 1.

    In Someone Else’s Shoes

    DaNice D Marshall - Granulomatosis with Polyangiitis

    Acrylic

  44. Intensity by Ali SP - Hypocomplementemic Urticarial Vasculitis, Image 1.

    Intensity

    Ali SP - Hypocomplementemic Urticarial Vasculitis

    Acrylic on stretched canvas

  45. IV Couture by G Shellye Horowitz - Hemophilia A and Superior Mesenteric Artery Syndrome, Image 1.

    IV Couture

    G Shellye Horowitz - Hemophilia A and Superior Mesenteric Artery Syndrome

    3D Material Art: Butterfly Needles, Vial Caps, Saline Syringe Caps

  46. Life in Pain by Megan Howard - Behçet’s Disease and Idiopathic Hypersomnia, Image 1.

    Life in Pain

    Megan Howard - Behçet’s Disease and Idiopathic Hypersomnia

    3D Material Art: Kiln-formed Glass

  47. Lungs of Life by Ella Balasa - Cystic Fibrosis, Image 1.

    Lungs of Life

    Ella Balasa - Cystic Fibrosis

    Pencil on Paper

  48. Marooned by Sylvie Leyerle - Episodic Ataxia, Image 1.

    Marooned

    Sylvie Leyerle - Episodic Ataxia

  49. Moyamoya’s Seasonal Tapestry by Niki Lake - Moyamoya and Undiagnosed, Image 1.

    Moyamoya’s Seasonal Tapestry

    Niki Lake - Moyamoya and Undiagnosed

    Poetry

  50. Music Turned Her Round and Round by Mary Payton Zajicek - Visual Snow Syndrome, Image 1.

    Music Turned Her Round and Round

    Mary Payton Zajicek - Visual Snow Syndrome

    2D Visual Art: Mixed Media